Info for Leaflet
It is important to me that the leaflet be about more personal ways to deal with endometriosis and just painful periods in general.
Not enough is done to raise awareness of local endometriosis group and inform people of the support and advice they can get online from other sufferers. A lot of ways i deal with symptoms have come from forums and my own trial and error. I even passed on this knowledge to a friend who was having a laparoscopy. They are the kind of things a medical professional doesnt always advise you on.
Personally, i always use a hot water bottle OR a microwavable heat pack or heat patch. The latter two are much better for work envrionments as they are usually safer and easier to use if you have to move around a lot.
I also sit on a pillow. This is because i often find that any pressure pushing up causes me more pain. By sitting on a pillow and leaning back, i elevate my pelvis and get complete pressure relief.
Buy two sizes of things. I have my bloated days and of course, i dont fit into most of my jeans, trousers and other things. I have just simply come to the conclusion that while suffering, i will never be just one size. I will either opt for elastic options that move with me, or have two sizes of things so i can match whatever my body is doing that day.
On really heavy days, i can easily go through a few night time pads. For these days, i have to bring in the big guns. Maternity pads are much much thicker than the regular pads you get. You can get them in Boots and they arent expensive so they are definately worth having on standby for really bad days.
If you have regular heavy bleeds and worry about night time, i ended up buying a waterproof fitted bedsheet. Although i usually slept on a towel on those nights, i felt reassured knowing that if i was very heavy, i wouldnt be ruining the matress.
All this practical info i learned from almost 10 years of suffering. None of this i was told by a GP or Gynea doc. This is just some of the things ive learned from my time and all of this i would have loved to have known in the beginning. I would like the brochure to contain a bit of this knowledge, just to show that talking about it to others really helps. Sharing stories can also help newly suffering people identify and manage symptoms and also to take away the fear of not knowing what to expect from doctors.
There is one thing i want to totally stay away from. A Hysterectomy is NOT a cure for endometriosis. This was mentioned to me before my official diagnosis and i was terrified. Removing the organ is not a cure for issues with it and for young women it should never be considered as an option until ALL other options have been exhausted. For that reason, i shall not be mentioning it in my leaflet.
I am no medial professional on the subject. I can only merely advise others on my experience and gather the knowledge from where i know to gather it from. If i can give readers just a sample of what can be done to help and where to look for it, id have done the job i intend to do.
Not enough is done to raise awareness of local endometriosis group and inform people of the support and advice they can get online from other sufferers. A lot of ways i deal with symptoms have come from forums and my own trial and error. I even passed on this knowledge to a friend who was having a laparoscopy. They are the kind of things a medical professional doesnt always advise you on.
Personally, i always use a hot water bottle OR a microwavable heat pack or heat patch. The latter two are much better for work envrionments as they are usually safer and easier to use if you have to move around a lot.
I also sit on a pillow. This is because i often find that any pressure pushing up causes me more pain. By sitting on a pillow and leaning back, i elevate my pelvis and get complete pressure relief.
Buy two sizes of things. I have my bloated days and of course, i dont fit into most of my jeans, trousers and other things. I have just simply come to the conclusion that while suffering, i will never be just one size. I will either opt for elastic options that move with me, or have two sizes of things so i can match whatever my body is doing that day.
On really heavy days, i can easily go through a few night time pads. For these days, i have to bring in the big guns. Maternity pads are much much thicker than the regular pads you get. You can get them in Boots and they arent expensive so they are definately worth having on standby for really bad days.
If you have regular heavy bleeds and worry about night time, i ended up buying a waterproof fitted bedsheet. Although i usually slept on a towel on those nights, i felt reassured knowing that if i was very heavy, i wouldnt be ruining the matress.
All this practical info i learned from almost 10 years of suffering. None of this i was told by a GP or Gynea doc. This is just some of the things ive learned from my time and all of this i would have loved to have known in the beginning. I would like the brochure to contain a bit of this knowledge, just to show that talking about it to others really helps. Sharing stories can also help newly suffering people identify and manage symptoms and also to take away the fear of not knowing what to expect from doctors.
There is one thing i want to totally stay away from. A Hysterectomy is NOT a cure for endometriosis. This was mentioned to me before my official diagnosis and i was terrified. Removing the organ is not a cure for issues with it and for young women it should never be considered as an option until ALL other options have been exhausted. For that reason, i shall not be mentioning it in my leaflet.
I am no medial professional on the subject. I can only merely advise others on my experience and gather the knowledge from where i know to gather it from. If i can give readers just a sample of what can be done to help and where to look for it, id have done the job i intend to do.
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